Americans United for Life recently gave testimony in Connecticut and Maryland opposing assisted suicide bills that place vulnerable persons at risk. Below is the testimony given in CT. To read the testimony given in MD, click here.
Written Testimony of Steven Aden, J.D. Policy Counsel, Americans United for Life In Opposition of Senate Bill No. 1076 Submitted to the Joint Committee on Public Health February 27, 2023
Dear Chair Anwar, Chair McCarthy Vahey, Vice-Chair Kushner, Vice-Chair Marx, Vice-Chair Parker, and Members of the Committee:
My Name is Steven H. Aden, and I serve as Chief Legal Officer and General Counsel at Americans United for Life (“AUL”). Established in 1971, AUL is a national law and policy nonprofit organization with a specialization in abortion, end-of-life issues, and bioethics law. AUL publishes pro-life model legislation and policy guides on end-of-life issues, tracks state bioethics legislation, and regularly testifies on pro-life legislation in Congress and the states. Our vision at AUL is to strive for a world where everyone is welcomed in life and protected by law.
Thank you for the opportunity to testify against Senate Bill No. 1076, “An Act Concerning Aid in Dying for Terminally Ill Patients” (“bill”). It is my legal opinion that the bill places already-vulnerable persons at greater risk of abuse and coercion, fails to protect the integrity and ethics of the medical profession, and goes against the prevailing consensus that states have a duty to protect life.
Suicide by Physician Targets Already-Vulnerable Persons and Puts Them at Greater Risk of Abuse and Coercion
Connecticut has a responsibility to protect its most vulnerable persons— including people living in poverty, the elderly, and those living with disabilities— from abuse, neglect, and coercion. These individuals are already exposed to greater risks, thus, legalizing suicide by physician is neither “compassionate” nor an appropriate solution for those who may suffer depression or loss of hope at the end of their lives.
Contrary to the prevailing cultural narrative, patients are not considering suicide by physician for pain management. Rather, state reports show that patients seek assisted suicide because of the challenges they face living with severe illnesses or disabilities. In 2021, only 26.9% of Oregon patients and 46.0% of Washington patients cited “[i]nadequate pain control, or concern about it” as a reason for choosing suicide by physician. As bioethicist Ezekiel Emanuel has noted, “the main drivers [of those contemplating suicide by physician] are depression, hopelessness, and fear of loss of autonomy and control. . . . In this light, assisted suicide looks less like a good death in the face of unremitting pain and more like plain old suicide.”
Like Emanuel, many professionals in the bioethics, legal, and medical fields have raised significant questions regarding the existence of abuses and failures in states with approved suicide by physician, including a lack of reporting and accountability, coercion, and failure to assure the competency of the requesting patient. Notably, the Alzheimer’s Association recently terminated its relationship with a prominent assisted-suicide advocacy group, Compassion and Choice. Accordingly, the Alzheimer’s Association issued a press release stating,
“[T]he Alzheimer’s Association entered into an agreement to provide education and awareness information to Compassion & Choices, but failed to do appropriate due diligence. [Compassion & Choices’] values are inconsistent with those of the Association. We deeply regret our mistake, have begun the termination of the relationship, and apologize to all of the families we support who were hurt or disappointed . . . . As a patient advocacy group and evidence-based organization, the Alzheimer’s Association stands behind people living with Alzheimer’s, their care partners and their health care providers as they navigate treatment and care choices throughout the continuum of the disease. Research supports a palliative care approach as the highest quality of end-of-life care for individuals with advanced dementia.”
Even though health organizations and bioethics professionals have rejected the practice of physician-assisted suicide, the cultural narrative around legalizing physician-assisted suicide persists. This has led to a “suicide contagion,” or the Werther Effect. Empirical evidence shows that media coverage of suicide inspires others to commit suicide as well. Studies have also demonstrated that legalizing suicide by physician in certain states has led to a rise in overall suicide rates— assisted and unassisted—in those states. After accounting for demographic, socioeconomic, and other state-specific factors, suicide by physician is associated with a 6.3% increase in overall suicide rates. Unfortunately, these effects are even greater for individuals older than 65, which has seen a 14.5% increase in overall suicide rates for that demographic. As a result, suicide prevention experts have criticized suicide by physician advertising campaigns.
S.B. 1076 targets vulnerable individuals who are suffering from depression and hopelessness and communicates the message that their lives are not worth living. However, these individuals are indeed worthy of life and equal protection under the law, which is why S.B. 1076 should be rejected.
The Bill’s Supposed Safeguards Are Ineffective in Adequately Protecting Vulnerable Patients
Although this bill includes so-called “safeguard” provisions, in effect, these protections cannot adequately protect vulnerable end-of-life patients. Instead, this bill opens the door to real abuse. For example, the bill’s mental health assessment requirement is practically nonexistent. The bill requires the physician to refer the patient for counseling “to determine whether the patient is competent to request aid in dying.” “Counseling” is defined as “one or more consultations as necessary between a psychiatrist, psychologist or licensed clinical social worker and a patient for the purpose of determining that a patient is competent and not suffering from depression or any other psychiatric or psychological disorder that cause impaired judgement.”
This safeguard is ineffective because the bill fails to define “impaired judgment.” This means that even if the patient is suffering from depression, that in and of itself does not preclude the patient from being prescribed and utilizing life-ending medication. However, scholarship shows “[a] high proportion of patients who request physician-assisted suicide are suffering from depression or present depressive symptoms.” “[A]round 25–50% of patients who have made requests for assisted suicide showed signs of depression and 2–10% of patients who have received physician-assisted suicide were depressed.” These patients’ “desire for hastened death is significantly associated with a diagnosis of major depression.” Their psychiatric disability also may impair decision-making, “such as the decision to end one’s life.”
Moreover, the bill allows for just one session between a mental health professional and a patient before the patient can be deemed competent. This raises serious concerns regarding a patient’s competency because psychiatrists have limited ability in diagnosing depression. For example, one study has shown that “[o]nly 6% of psychiatrists were very confident that in a single evaluation, they could assess whether a psychiatric disorder was impairing the judgment of a patient requesting assisted suicide.” If trained psychiatrists have difficulty adequately assessing the mental well-being of end-of-life patients, clinical social workers will encounter even more difficulties in making such assessments, especially given their limited training and qualifications compared to psychiatrists. Nevertheless, under this bill, an individual suffering from depression can be deemed competent to take their own life after one consultation with a psychologist, psychiatrist, or clinical social worker. For these reasons it is difficult to argue that this “safeguard” in S.B. 1076 will allow for an accurate assessment of an individual’s mental health and their competency.
In addition, the bill assumes that physicians can make the correct diagnosis that a patient has a terminal disease, injury, or condition which “will produce a patient’s death within six months.” Specifically, the bill requires the “attending physician” to determine whether the patient has a terminal illness. “Attending physician” is merely defined as a physician “who has primary responsibility for the medical care of a patient and treatment of a patient’s terminal illness….” This fails as a safeguard as well because terminality is not easy to predict, and doctors have difficulty accurately dating a patient’s terminal illness life expectancy. As the National Council on Disability notes, “[a]ssisted suicide laws assume that doctors can estimate whether or not a patient diagnosed as terminally ill will die within 6 months. It is common for medical prognoses of a short life expectancy to be wrong.” Likewise, “[t]here is no requirement that the doctors consider the likely impact of medical treatment, counseling, and other supports on survival.”
Studies have shown “experts put the [misdiagnosis] rate at around 40%,” and there have been cases reported where, despite the lack of underlying symptoms, the doctor made an “error” which resulted in the individual’s death. Prognoses can be made in error as well, with one study showing at least 17% of patients were misinformed of their diagnosis. Nicholas Christakis, a Harvard professor of sociology and medicine, agreed “doctors often get terminality wrong in determining eligibility for hospice care,” and Arthur Caplan, the director of the Center for Bioethics at the University of Pennsylvania, considers a six-month requirement arbitrary.
In sum, the bill’s purported “safeguards” fail to protect vulnerable end-of-life patients, leaving them susceptible to coercion and abuse at the hands of physicians and mental health professionals.
Suicide by Physician Erodes the Integrity and Ethics of the Medical Profession and Allows for Physicians to Experiment with Lethal Drugs on End-of-Life Patients
Prohibitions on suicide by physician protect the integrity and ethics of medical professionals, including their obligation to serve patients as healers, to “keep the sick from harm and injustice,” and to “refrain from giving anybody a deadly drug if asked for it, nor make a suggestion to this effect.” Despite these ethical obligations, physicians are using experimental lethal drugs when assisting in suicide. There is no standardized drug nor required dosage for assisted suicide. “Of course, there is no federally approved drug for which the primary indication is the cessation of the mental or physical suffering by the termination of life.” The Food and Drug Act regulates pharmaceuticals at the federal level and requires “that both ‘safety’ and ‘efficacy’ of a drug for its intended purpose (its ‘indication’) be demonstrated in order to approve the drug for distribution and marketing to the public.” Lethal medication could never meet the safety or efficacy requirements for treating mental or physical ailments.
Around 2016, suicide doctors turned away from using short-acting barbiturates due to price gouging and supply issues. Consequently, suicide doctors began mixing experimental drug compounds at lethal dosages to assist suicides. As the U.S. Food and Drug Administration (“FDA”) notes on its website, “[c]ompounded drugs are not FDA-approved. This means that FDA does not review these drugs to evaluate their safety, effectiveness, or quality before they reach patients.” This means physicians have experimented their lethal drug compounds on end-of-life patients with “no government-approved clinical drug trial, and no Institutional Review Board oversight when they prescribed the concoction to patients.” Notably, the bill is silent as to what drugs doctors must use and there are no safeguards preventing doctors from using experimental lethal drug compounds directly on patients.
Ultimately, S.B. 1076 harms the medical profession, physicians, and people who may be struggling to process the shock of a difficult diagnosis. It opens the door for physicians to be forced to violate their conscience rights and medical ethics, such as the Hippocratic Oath, and increases the risk that patients will be coerced or pressured into prematurely ending their lives when pitched with suicide by physician as a viable treatment option with alleged benefits. Even the U.S. Supreme Court has acknowledged that “[t]he State also has an interest in protecting the integrity and ethics of the medical profession.” In Justice Antonin Scalia’s dissent to another Supreme Court case involving a ban on the use of controlled substances for suicide by physician, he pointed out: “Virtually every relevant source of authoritative meaning confirms that the phrase ‘legitimate medical purpose’ does not include intentionally assisting suicide. ‘Medicine’ refers to ‘[t]he science and art dealing with the prevention, cure, or alleviation of disease’ . . . . [T]he AMA has determined that ‘[p]hysician-assisted suicide is fundamentally incompatible with the physician’s role as healer.’”
The Majority of States Affirmatively Prohibit Medical Suicide
The majority of states prohibit physician-assisted suicide and impose criminal penalties on anyone who helps another person commit suicide. Connecticut should remain in this majority. Since Oregon first legalized the practice in 1996, “about 200 assisted-suicide bills have failed in more than half the states.” In Washington v. Glucksberg, the U.S. Supreme Court summed up the consensus of the states: “In almost every State—indeed, in almost every western democracy—it is a crime to assist a suicide. The States’ assisted-suicide bans are not innovations. Rather, they are longstanding expressions of the States’ commitment to the protection and preservation of all human life.”
This longstanding consensus among the vast majority of states is unsurprising given the “opposition to and condemnation of suicide—and, therefore, of assisting suicide—are consistent and enduring themes of our philosophical, legal and cultural heritages.” Indeed, over twenty years ago, the Court in Glucksberg held there is no fundamental right to suicide by physician in the U.S. Constitution, finding instead that there exists for the states “an ‘unqualified interest in the preservation of human life[,]’…in preventing suicide, and in studying, identifying, and treating its causes.”
Thus, only by rejecting S.B. 1076 can this Committee further Connecticut’s important state interest in preserving human life, as well as its duty to protect the lives of her citizens, especially the lives of the most vulnerable groups in our society.
Connecticut should continue to uphold its duty to protect the lives of all its citizens—especially vulnerable people groups such as the ill, elderly, and disabled— and maintain the integrity and ethics of the medical profession by rejecting suicide by physician and voting against S.B. 1076.